Act II

I was checking off my last-minute errands before we took off to Mexico the next day.  It was a vacation I finally felt well enough to enjoy, except for this little bout with a pesky chest infection.  No matter, I thought, another round of antibiotics should do the trick, and I was just leaving the doctor’s office with prescription in hand.  I should have known it was bad sign when the nurse came running out after me as I headed to my car after the chest x-ray.

“Can you come back in?” she asked, “The doctor would like to speak with you.”

Crap.  They found something.

A million things ran through my mind in that short walk back to his office.  My health had been returning steadily.  It had been almost four years of clean scans since my cancer treatment.  Had the lymphoma returned?  Could it be?  But these symptoms were different.  I couldn’t catch my breath after walking ten yards, my heart pounded after walking upstairs, and I couldn’t sleep due to a constant cough.  Nothing like before.  It wasn’t the same script.

Doctor N gave me that same sideways look I had seen once before.  Uh oh, I thought.

“You may have Cardiomyopathy,” he said.

“I don’t know what that is, but it has something to do with the heart…?”

“Yes, its heart damage.  Most likely caused by the chemotherapy,” he continued.  Knowing of my vacation plans he said, “You need to have an echocardiogram immediately.  I’m setting up an appointment for you downtown this afternoon, and I’m working on getting you in to see a cardiologist.”  I only learned later he had been writing “STAT” on everything all along.

Like a book you are partway through before you realize you’ve read it before (except you don’t remember the ending), this was all way too familiar.  Numbly I drove downtown, knowing the way to the hospital by rote, which allowed me too much time to ponder what this all really meant.

After the echocardiogram was done, the tech nurse asked if I could wait a minute.  She wanted to have a cardiologist check it before I left.  As more and more time ticked away, I began to realize they were debating whether they should let me go.  Finally, the nurse said I could leave, but that Doctor N would be calling me.  I got as far as the lobby outside the exam room when my phone rang.

Good news just doesn’t travel this quickly, and I knew what he was going to say even before he got the words out.  “As I suspected, you do have Cardiomyopathy.  You have an urgent appointment Monday morning to see the cardiologist.  We decided to let you go home now instead of admitting you, but Lynnea. you. cannot. go. to. Mexico.”

I sat, eyes brimming, as fear egged on emotions that I fought to contain.

“I’m so sorry,” he continued, “I know it’s not what you wanted to hear, but this is extremely serious.  If something were to happen… you may not come back.”  As that idea sunk in, I knew he was right, and although I could barely form the words, I said I would be at the appointment on Monday.

Now what.  What in the world was I dealing with?  How serious is “serious”?  What about the trip?  We’re leaving in the morning.  No wait, I’m not leaving.  Should they still go?  They should go.  Will they?  They won’t want to.  Am I safe to stay alone?  What if…?  What a mess.

Of course the first thing my husband and I did when I got home was to go to the internet and seek out as much information as possible.  That’s when we learned that… oh… Cardiomyopathy is Heart Failure.  All my symptoms were there… and, ohh… the possibility of organ transplant… and ohhh…. the possibility of sudden death.  That’s when the reading stopped.  Cue ton of bricks.

We looked at each other, held on tight, let the tears flow until we found our breath.  Shaking my head and straightening, I said,  “Well.  We’ve been here before, haven’t we?”  Conceding nods.  We both know the mantra that comes next.

“You and I both know that if it is time for me to go, then no one, and nothing, will prevent that from happening.  And, if it is not time for me to go, then no one, and nothing, can make that happen.”

If it had not been for the cancer, I would not have known this to be true.

I could not believe I was in this place again, but now was not the time to think about that.  We only had a few hours to sort things out, tell the family, and make a new plan.  It was emotional, messy, difficult, hard, hard work.  Finally, with the help of my parents, a plan emerged that we could reluctantly live with.  I would stay, my oldest son would be there with me until my parents flew in the next evening.  My husband, son and girlfriend would go to Mexico as planned with the understanding if they decided to turn around and come home at any time, they could.

So marked the inauspicious beginning of Act II; Heart Failure.

And although my heart didn’t stop working at that time, it surely felt like it was breaking.  Clearly Mexico was not where God wanted me to go.  But I couldn’t help but ask Him ~ then where in the world, God, are we heading now?

5 Responses

  1. Lynnea you are such a good writer in addition to being an amazing artist. I am so sorry you are having to deal with all this. Our lives and happiness are all-too-fragile, but your courage and grace is an inspiration.

  2. Your story continues to be incredible. What an emotional see-saw. Even though we are an integral part of the family, we didn’t know the real story until you wrote this blog. Bless you my dear child. Love, Mom

  3. Here I go again – traveling thru this journey with you – being flooded with emotions – tears welling up with a gasp – can’t imagine living it!
    Prayers for your new trial!

  4. Lynnea,
    I am so sorry that you are going through this. I had no idea. So glad that we have reconnected.

  5. Wow – once again your words make me feel I am right there watching you go through this – all the unknowns must have been tormenting.

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